You or Someone you know HAS Lupus!   “Lupus Interuptus” kind of says it all, don’t you think?

Hang out and hopefully find great tips on managing life with lupus.  Quality is key…and information is everything!

Only Sometimes, It IS Lupus!

I take enough PILLS to be FULL

Oh yeah!  How bout you?  Here’s my list; what’s yours?  In order of how much I hate them: prednisone, metformin, iron, plaquenil, lipitor, lisonopril, meloxicam, cymbalta, tramadol, oxycodone, promethazine, flexeril, advair, B12, and I’m sure I’m forgetting a few.  Those of you with this lovely disease KNOW what these meds are for, jic your not sure…SLE, type 2 diabetes, chronic anemia, peripheral neuropathy, osteoarthritis, plantar fasciitis, vasculitis, cutaneous porphyria…shall I go on?  You get it….lupus is a system wide disease…you never know where it might strike…and like you, I don’t look sick.  Don’t ask how I feel.  I think you know the answer to that!

Appetite of a BEAR

As you also know lupus is difficult to dx and no two lupus sufferers have the same symptoms to the same degree!  This blog is just my story of how I TRY to MANAGE my disease.  I have a family to take care of, I work from home (very reduced hours) and lupus torments me with one thing or another ALL THE TIME.  My body betrays me and never lets me forget how damaged and painful it can be.

If I was just a HEAD

There are times I think if I was just a HEAD I could make more sense of life, rather than have to try and move this B O D Y around; joint pain and peripheral neuropathy peck at my disposition when I’m not paying attention, nausea and gastric upsets eat at my stomach enough to make me afraid to eat, however the steroids I have to take to “tame” my overactive immune system gives me “moon face” and the appetite of a BEAR.

Who is this BLOG for?

Who knows what or when you might read or comment on something that will help someone else…THAT’s why I’m doing it.  Plus since I hear myself TALK all the time, I might as well put it in writing…besides when lupie fog gets me well….I may forget…


Links to help manage day to day…like where to check the UV, where to buy protective clothing, celebrities with lupus, as much info as my brain can stir up, info is power, and us lupies need all the power we can get!!!!